Friday, March 20, 2020

Still moving strong....



So, wow.  A whole new set of rules.

Suddenly, we have a "personal shopper" - Jamie.  Our four adult kids do not want either of us to venture into public for any reason due to our immune suppressant issues.  Figuring out how to shop on line with the shelves empty is a new skill.  After I spent the better part of an hour getting a grocery account and scanning the pictures of food items to create a list, I felt relieved and took a shower.  When I picked up my phone, there were 15 text messages from Jamie regarding all of the items that they either substituted or refunded.  Jamie sent me an apology with this picture (see above) to let me know that there are NO frozen vegetables and they are out of many other items here in Portland.  Okay....  This is different.

At the Cancer Center (where we HAVE to go twice a week), I wear a mask.  My phone doesn't recognize me.  I don't recognize me.  Things are changing.

Jolynn's appointment yesterday went well.  We tried to convince them that we don't need to come in twice a week but rules are rules for transplant patients and their caregivers.  Jo gets at least one bag of liquid magnesium at each visit - yesterday, she needed two bags.  But her bloodwork and liver and kidney numbers continue to soar - the staff is quite impressed with her recovery! They urge her to be more active - to walk, to do things  around the house, to take in the breath of optimism that her body is trying to give her.  Around the edges of their confidence in her is the passive warning that they continue to check for re-occurring cancer signs.  Extra vials of blood were taken yesterday for tests that can reveal how much of her cells are her old, MDS cells and how much of her cells are the new, Jan-donated cells.  We should have those results next week.  Also next week, Jolynn will  have a bone biopsy on Tuesday so that the professionals can glean even more detailed information about her health.  We won't have those results for at least 10 days after the biopsy.  Remaining positive and hopeful can only help....and that's where we are at the moment, even in the face of all of this change.

Meanwhile, back on the ranch, I'm getting my bookwork done.  I'm getting very organized.  I'm getting a lot of sleep.  I'm getting cabin fever. 

Jolynn got on the riding mower with her face mask and a warm hat over her bald scalp and cut the grass yesterday. 

Jamie just arrived with our groceries.  And the beat goes on.......
 


                            https://www.youtube.com/watch?v=bS3O5zg290k

Be Safe 💙

2 comments:

  1. Excellent reportage - I think you have found your métier. Love third to the last paragraph. Keep on keepin'on.

    ReplyDelete

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